How do you go about introduction of terminology?
If we have to introduce a new terminology into the TR then we first have to decide if this terminology/concept qualifies to be in TR. These will include terminologies that need to be centrally defined and would be used across entire HIE ecosystem.
Adding a new Terminology:
If the terminology is specific to the hospital, it can be a local to hospital. But if it is a terminology which is applicable for most of the hospitals, it should be a TR terminology. Remember we cannot report for a local terminology in SHR or DHIS2.
Any terminology for things like tests/procedures/diagnosis/orders etc MUST go in TR. All diagnosis are already in there, so it’s wise to define synonyms as needed and not add new diagnosis. For all others, as and when need arises, it can go into TR after consulting with TR group (make sure a certain concept already doesn’t exist before creating a new one).
TR Concept Proposal module should be used of creation of new Concepts.
Who should decide when in doubt? - DGHS, other advisory body setup/entrusted by DGHS
Who can help? - Terminology Advisory Group (TWG)
What should I do if I think this information is relevant for the patient in the SHR/HIE?
Get in touch with DGHS. Discuss and identify the need for sharing. People likely to be involved - DGHS MIS representative, DGHS appointed advisor(s), Terminology working group (TWG) members etc. They will help identify whether information is relevant or whether subset of it is required.
Once you get a go-ahead, TWG will create one or more terms in TR. They might even define a specific template.